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Life with Multiple Sclerosis and More. A look back at 2017 before jumping into 2018. A Blood Test for MS. Pacing for the Cure and Multiple Sclerosis. Smart Patients and iConquerMS Collaboration. Your input needed for talk! Karma and so much more. Subscribe to Inside My Story. Enter your email address to subscribe to this blog and receive notifications of new posts by email. Cannot load blog information at this time.
PCORnet, the National Patient-Centered Clinical Research Network.
2018 PMSF International Family Conference.
What do parents want to know? Is 22q13 deletion syndrome a mitochondrial disorder? Educating children with 22q13 deletion syndrome. Have you ever met a child like mine? How do I know which genes are missing? 22q13 deletion syndrome and science leadership. How can the same deletion have such different consequences? The hope of precision medicine. How do we know which genes are important? January 5, 2017.
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About the PMS International Registry. Preguntas Frecuentes - Español. Questions Frequentes - Française. Domande Frequenti - Italiano. Welcome to the Phelan-McDermid Syndrome International Registry. The purpose of this registry is to consolidate information from individuals with Phelan-McDermid Syndrome into a single database, which will be utilized by researchers to understand Phelan-McDermid Syndrome better. Click here to register now! Forgot username password? Sign in to Reconsent.PARSED CONTENT
The site pmsiregistry.patientcrossroads.org had the following on the homepage, "Welcome to the Phelan-McDermid Syndrome International Registry." I noticed that the webpage said " The purpose of this registry is to consolidate information from individuals with Phelan-McDermid Syndrome into a single database, which will be utilized by researchers to understand Phelan-McDermid Syndrome better." They also stated " Click here to register now! Forgot username password? Sign in to Reconsent."SEE MORE DOMAINS
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