EBCare Registry
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Current Research Trials for Epidermolysis Bullosa. What is debra of America. Staff and Board of Directors. Government Affairs and Legal Aid. Fundraise for debra of America. Plan a Supporter Led Event. Share our Logos and Banners.
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EBCare RegistryDESCRIPTION
The EBCare Fact Sheet. If you consent to participate in the Registry, all the personal information you provide will be kept strictly confidential. We encourage individuals and families affected by all forms of epidermolysis bullosa EB to participate in the EBCare Registry. In order to do so, you must read the Registry Information Sheet.PARSED CONTENT
The site ebcare.patientcrossroads.org had the following on the homepage, "If you consent to participate in the Registry, all the personal information you provide will be kept strictly confidential." I noticed that the webpage said " We encourage individuals and families affected by all forms of epidermolysis bullosa EB to participate in the EBCare Registry." They also stated " In order to do so, you must read the Registry Information Sheet." The meta header had Dup15q as the first keyword. This keyword was followed by EBCare, EBCares, and Registry which isn't as important as Dup15q. The other words the site used was Patients.SEE MORE DOMAINS
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Este nosso blogue tem casa nova. Enviar a mensagem por email. O ano letivo está terminado! Mas, não podemos deixar de partilhar as últimas surpresas e atividades que vivemos. Ambiente - EB Guilherme Stephens. Formámos a bandeira do projeto Eco Escolas. Com os alunos e professores do. Encerramento - na Escola Secundária Calazans Duarte;.