barthsyndromeregistry patientcrossroads.org

Barth Syndrome Registry and Repository BRR

Barth Syndrome Registry and Repository BRR. The Barth Syndrome Registry and Repository BRR. The purpose of BRR is to amass information and biological specimens from individuals with Barth syndrome into a single database, which will be utilized by researchers to better understand Barth syndrome. Through our families contribution to the BRR knowledge is gained, research is facilitated and differences are being made.
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The site barthsyndromeregistry.patientcrossroads.org currently has a traffic ranking of zero (the smaller the more traffic). We have crawled one page within the domain barthsyndromeregistry.patientcrossroads.org and found two websites referring to barthsyndromeregistry.patientcrossroads.org.
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Barth Syndrome Registry and Repository BRR

DESCRIPTION

Barth Syndrome Registry and Repository BRR. The Barth Syndrome Registry and Repository BRR. The purpose of BRR is to amass information and biological specimens from individuals with Barth syndrome into a single database, which will be utilized by researchers to better understand Barth syndrome. Through our families contribution to the BRR knowledge is gained, research is facilitated and differences are being made.

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The site barthsyndromeregistry.patientcrossroads.org had the following on the homepage, "Barth Syndrome Registry and Repository BRR." I noticed that the webpage said " The Barth Syndrome Registry and Repository BRR." They also stated " The purpose of BRR is to amass information and biological specimens from individuals with Barth syndrome into a single database, which will be utilized by researchers to better understand Barth syndrome. Through our families contribution to the BRR knowledge is gained, research is facilitated and differences are being made."

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